Saturday, July 6, 2019

He Licked It

He Licked It

One of my daughter's has Aspergers.  She has two son's with Autism.  They all live with me which is good.  The youngest of the boys is 4 years old.  He and his brother have always licked things but his brother who is 5 years old has grown out of that, for the most part, thankfully.

The 4 year old has not.  We have to watch him when we are in different places to be careful what he might lick.  I got a new recliner.  It is red cloth.  When my son and son in law brought it to my house the boys started climbing on it and sitting in it.  Then it happened...the four year old licked it.  After the surprise we laughed.  I guess licking it was his way of baptising it into the family.  

Do you have a licker at your house?  Let me know in the comments.  We don't know any others. 

Tuesday, June 4, 2019

Four Ways to Qualify For Medicaid

I routinely get calls about families with children with autism and other disabilities needing more therapy or to see specialists that their insurance doesn’t cover.  It could be speech therapy, occupational therapy, ABA, etc. 

At some point the conversation works its way around to if their child had Medicaid it might help with some of the things the child needs that the family cannot afford above and beyond insurance.  Many families are surprised to learn there is more than one way to qualify for Medicaid.  You have four ways you might be able to qualify for Medicaid if you have a child with a disability that I know about.

The first way is to apply for Medicaid.  This sounds strange but many times parents are told by friends and professionals that they will not qualify when they do.  Medicaid takes strange things into account when you apply.  For instance they take into consideration all those medical bill you are paying out of pocket right now.  My experience with parents and Medicaid workers is the Medicaid worker will try to ask you about things you might not of thought about or might not know about as best they can if you explain your situation. 

The second way is what in our state is called the Family Opportunity Act.  It might be called something different in other states.  Louisiana has a program at the Medicaid office for families to be able to ‘buy in’ to Medicaid if they have a child with a disability.  There are other qualifications too.  If the person who answers the phone does not know about this specific program ask for a supervisor as this is a small program.  From what I understand from other parents the fee is very nominal especially compared to what they are or could be paying out of pocket. 

The third way to get Medicaid is if your child can get SSI.  In our state and some other states part of getting SSI is also getting the Medicaid card.  Parents are told from the beginning that income is a consideration and it is, but they should apply anyway.  The child also has to have a severe enough disability. Think about it like this.  If a child qualifies for even $5.00 of SSI they get a Medicaid card.  The cash assistance may not be encouraging to you but the Medicaid may be a big help.

The final way I know of to get a Medicaid card is though the state’s Community and Family Support Services.  These services are at your area Human Service Authority if you are in Louisiana.  If you are in another state ask at your state’s Office or Department of MR/DD.   If your child’s disability is severe enough your child could qualify for what is commonly called a Waiver.  One of the services you get as part of the Waiver is a Medicaid card.  The important part here is that if your child qualifies for the Waiver it is regardless of your income. 

I am sure there are other ways to qualify for a Medicaid card.  These are just the ones I know about for a child with a disability.  Some of these include adults with disabilities.  You have to ask though.  Do you know any other ways to qualify for Medicaid? 

It has been awhile..

It has been awhile.  I guess I ran out of things I wanted to write about.  Though occasionally I come across issues that I want to share.  Check out my next post. 

Thursday, May 25, 2017

Second Grandson

We did go to the appointment for the second grandson.  He did get the same diagnosis of autism.  His autism is vastly different than his brother's autism.

His mother did agree to try another medication.  He is so aggressive.  She doesn't like medications.  She took medication for help with her Aspergers.  I tried then and tried now to explain it was just a tool to help with the aggression.  I think she is just at the point she is willing to try anything.  He beats on her pretty bad.  She cries.  Then I am upset.

Then she just called me.  She said the younger one's score was 69 and the older's ones score was 62 on the scoring tool the doctor use.  Then she asked me if that meant they both have autism.  I told her yes.

She missed it.  I just don't know what to say or think....

Wednesday, May 24, 2017

The Joys of Grandchildren with Autism

I know it has been a really long time since I posted.  I just sort of ran out of things I wanted to say.  Ran out of things to say about the issues my daughters were and do face... Ran out of things I wanted to say about adults with autism and aspergers.

As life has a way of doing though, things change and remain the same.  I live with the daughter with aspergers.  Well if you want to get technical it depends which one of us you are talking to about who lives with who.  I could maintain the house hold if they left and had this house before she and her family moved it so I stand on that. :-)

Anyway, she moved in with the boyfriend and one child.  With in a few months we found out she was pregnant.  Within a week she delivered son number 2.  (That is a WHOLE nother story. How do you not know until you are in the last week you are pregnant for a second child...)

I had noticed some odd things about the first child.  I quickly was able to zero in on some behaviors as child number two grew.  I kept thinking no.  But yes...

We have the diagnosis of autism for the second son because it was easier to identify the characteristics.  We go to the appointment for the first child which I fully expect to be the same diagnosis for as well.

We have gotten EarlySteps for the first child and now services from the school system.  The second child is in EarlySteps now.  I am using everything I learned.  We are even going to try some new things with the boys.  Particularly since the first grandson is so aggressive.

Who knows?  Maybe I will start blogging again regularly too.  Any grandparents working with adult children and grandchildren with autism spectrum disorders out there?

Wednesday, March 23, 2016

How To Teach Children With Autism

This started out with how to teach my typical child some things he had to learn for school.  It has turned into a pattern if you will to teach my children with Autism Spectrum Disorders.  I keep tweaking it but figured I better get it down while I can.

1.  Talk about it.  What are they supposed to know?  Where is the information?  Did they read it or look at it?  Can they repeat any and all parts of what they know?

2.  Take turns.  Let them be the teacher and ask you questions.  You be the teacher and ask them.  If it is a story role play the important parts.  Act out the things you learn in history.

3.  Tie it to things they know.  Where and when would you use those math facts?  Is there a scene in a movie like what you are learning about in history?  Is there a movie version of a book they are reading in English?  Is it the same or different?  Is there a movie of what they are learning in history?  Is it true or made up?  Which parts?

4.  Is there a visual reminder of some type?  Famous paintings or music that you can attach to the subject?  If it is a social skill can you come up with visual reminders?  Can you write your own story about it?

5.  Is there a game you can use those math skills?  A sport?  How about trivia for science or other subjects?  The ,Are You Smarter than a Third Grader' game?  (Or is it 5th grader?)

6.  Read a book about it.  On a lower grade level if you are reading for information for a school subject.  On a youth level if you are trying to teach a young adult about social skills.

7.  Model behaviors your self.  Later talk to your child about how you did that.

Then do it all again.

Sunday, March 13, 2016

Autism Acceptance

I guess I am having a bad day.  I wonder at the emails I am getting about Light it up blue for Autism Awareness.  If someone has not heard about autism and had the opportunity to look it up I would be amazed.

Autism  has been on every major television station I know of at least once and usually multiple times.  Then articles in newspapers and magazines too.  Student's with autism are  in every school I know about.

I would like to see a month or a day for Autism Acceptance.  That is a lot harder.  It is not that people do not know about it.  People do not know what to do our how to act around someone with Autism.  Then again maybe they do not want to.  

No I refuse to believe that.  I believe most people are basically good.  We as advocates, parents, and individuals with Autism need to help them figure out what to do.
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