Friday, September 5, 2014
Not a Good Year For Autism in Our Lives
I have to admit sometimes I'm full of my self. Things have been going so well for quite a while with my oldest daughter's services. Even the behaviors associated with her autism have been going fairly well. Then we had several problems right in a row and things have gone south. FAST. Somehow Dominoe burned herself with a hot bowl of soup. I haven't ever gotten a straight story from Dominoe if she carried the soup to her chair or if the DSP handed it to her that hot. As you may know with people with autism, getting a full accurate story is challenging. She's better now. But we spent a couple months going to the wound care doctor and having the wound debried. I now know more about would care, bandages, tapes, and burns than I ever wanted to know. I have had intense discussions around health and safety. I have had even more intense discussions about following the doctor's orders with nurses and the provider company. Then the supervisor of the DSP's was let go from the company. Dominoe was very attached to her. The new supervisor is totally different and definitely not hands on. Things gradually got to the point that we started looking for another provider company. There started being issues in the process of linking with the new company. I thought they were misunderstandings. Unfortunately when I spoke to someone in the local state office within 2 hours the new provider decided the couldn't meet Dominoe's needs. I guess it's better I found out now. I know people in the state office across the state. I don't want a provider company who thinks they might be able to stop me from speaking to anyone about how things work. On the other hand I feel like I have done something wrong... Things were going so well for Dominoe. But then maybe I'm too full of myself. It's really about Dominoe being healthy, safe, and happy.